Warning: Extreme self-pitying post
So...I've been feeling...well, to put it eloquently, like shit lately. Actually, I remember it starting exactly a year ago...but that's a minor detail.
To put it simply, I'm sick. Really, really, really sick. But not in the way that you might think. After about year of gaining weight (I went from a size 2 to a size 6), having stomach problems, and feeling absolutely exhausted in the last few months, I got some bloodwork done, and my doctor tested it for me. Friday afternoon, he called my mother with the results and she sat me down when she came home.
Turns out, I have celiac disease. Basically, this means an allergy to anything with wheat products, because most of them contain wheat gluten. This is going to greatly restrict my diet from now on.
I can't even explain how upset and angry I am, for several reasons. First of which, before a bread store opened up near my house about a year ago, I honestly hated bread. Now, of course, I love it, especially a multi-grain flour loaf which contains tons of ingredients that I'm allergic to. Over the year I've actually developed a love for lots of wheat products, have been consuming everything from oats to rice cakes, and coincidentally I know love both of those but they happen to be on the strict "No" List for me now. I guess this is the main cause of my sadness. Although, I'm also sad because I've had severe asthma all of my life which is never going to go away, so I've always sort of had to watch what I did, and now having to watch what I eat is going to be even more unbearable.
I guess I am angry because celiac disease causes indigestion amongst other stomach problems and so I've been pumping myself full of bran and fibres and not understanding that they were actually making me worse and I've been trying to eat a certain way to help my health improve and nothing I've tried is working and I've obviously just made myself worse in a vain attempt to actually improve.
On top of all of this, celiac disease causes severe anemia so I have been walking around, half-asleep, with a hemoglobin count of 8 when it should be 12 or 13. I'm just exhausted now and fed up and I've even stopped wearing makeup because I don't even care what I look like anymore because I'm so tired and hungry all the time.
Dear god, I want out of this hell. Please.
That's all for now,
Saf.
12 Comments:
There is nothing wrong with a healthy dose of self pity. We all need to vent from time to time.
Try to look at it this way - knowledge is power. You were feeling bad and gaining weight and you didn't know why. Now you do and you can take some positive steps to combat the disease.
I was diagnosed with diabetes about eight years ago under similar circumstances, only I was losing weight like crazy. I couldn't eat and was crazy thirsty. When I was thirsty I used to drink milk which was, I came to learn, like pouring gasoline on a fire. Now I know better.
You have the power now and can make your own way out of the hell you are in. Good luck.
I am truely sorry. I know what it is like to find out how much fuel you added to the fire.. and it's not fun. Also, for the sheer fact that you are allergic to wheat. I couldn't imagine. So many foods are made with wheats... I imagine that will be difficult to sort through. I wish you luck trying to re-vamp your life to this news... and self pity is totally fine now and again. Just as long as you don't stay there :D
i am not aware of the health system in the US or Canada but in Europe people with Celiac are well taken care of. I have a friend in Italy who gets a whole box of rations (gluten free pasta, bread flour, etc...) for a whole month for free. I used to work as an au-pair for a family where 3 out of 4 people were celiac. There is a whole range of foods out there, where you can feel that you are not deprived of eating well!
So sorry to hear about it, and it must be tough to change the diet so suddendly! But it is good that they found out what was causing your stomach pains and hopefully everything falls into place now :)
Just dropping by to say "Hi" (from Professor's site). Bummer about what you're dealing with. All three of my brothers are diabetic and had to chnage their diets because of it. The toughest part was when they were making the adjustment, just trying to remember what they could and couldn't take. Now, it's just a no-brainer to them. It's like learning to drive a car. At first, you're going through all the mental checklists, but after awhile it's all on auto-pilot.
Take care. One thing I've noticed in Blogoland is there is always fantastic moral support when you need it. (I'm bipolar myself)
Wowww...thanks, guys. This really means a lot to me, and you are so right about the support, evydense!
Hi.....just checking in.
So, how are things going. Any better? I'm hoping so. It sucks feeling that way, doesn't it? Take care!
Sorry to hear how cack you've been feeling. I know a number of people with Coelic disease and, it may not be much comfort, but neither of them were idagnosed until well into their twenties.
As for the love of bread, I also know children who have gluten and lactose intolerances whose bodies crave these substances so much they chew the glue off of carpets because they contain them (seriously!)
Here in the UK, coelic sufferers receive gluten-free products on perscription and our supermarkets are choc full of gluten-free products - and they don't taste like cardboard!
Take care, hang in there, it will become manageable, honest.
honey self pity all u want trust me i do least 2 times a week. i also have diabetes like northern exposure has and had it since birth. he had some great advice!
hang in there- and I have been missig you. hope you come back soon
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